Transactional Tools, Transformational Tensions: Piloting the CHIRON Toolkit for Community-Centered Governance of Repository-Enabled Research

How they used Delve

Researchers at Sage Bionetworks used Delve to code de-identified transcripts of semi-structured interviews and recorded exploration sessions from four sites piloting the CHIRON Toolkit for community-centered research governance, developing themes with reflexive thematic analysis; two host scholars coded and refined themes together with external scholars and community experts.

“Transcripts and other data were deidentified and coded within Delve, a cloud-based qualitative coding software platform; Delve platform AI integrations were not used within this analysis.”

Field

Research governance / community-centered data governance

Data

Semi-structured interviews with participants at four pilot sites at three timepoints (initiation, midpoint, conclusion), weekly participant-completed exploration guides, audiovisual recordings of three sites' virtual exploration sessions, one site's questionnaire responses plus two supplemental interviews

Approach

Reflexive thematic analysis (Braun and Clarke) enriched by contextual analysis across sites; candidate themes developed iteratively by two host scholars through repeated review and analytic discussion, then reviewed with six external scholars and community experts, with tensions between perspectives kept rather than resolved by consensus

Data types

Interviews, Documents, Observation