Needs assessment for behavioral parent training for ADHD in Brazil
D'Or Institute for Research and Education, Rio de Janeiro, and Department of Psychology, Pontifical Catholic University of Rio de Janeiro (with the Okinawa Institute of Science and Technology Graduate University)
How they used Delve
Child mental health researchers at the D'Or Institute and the Pontifical Catholic University of Rio de Janeiro used Delve for two rounds of in vivo and structural coding across 54 telephone interviews with Brazilian parents, educators and healthcare providers, reaching team consensus on categories and themes about the ADHD treatment gap.
“An inductive coding strategy was used to explore narratives emerging from the data. Two rounds of coding were carried out using Delve software. One of the researchers (PB) completed initial coding using a combination of in vivo coding (using participants’ own words) and structural coding (codes limited by the topics introduced in the interview questions).”
- Field
- Child mental health services; access to behavioral parent training for ADHD in Brazil
- Data
- Semi-structured telephone interviews conducted January to June 2021 with 23 parents (1 hour each), 15 educators and 16 healthcare providers (30 minutes each), by a team of three post-doctoral and post-masters researchers supervised by a senior psychiatrist; recruited and consented over WhatsApp
- Approach
- Inductive coding in two rounds: the primary coder combined in vivo coding (participants' own words) with structural coding (codes bounded by the interview topics), coding pandemic-specific responses separately, then organised codes into main categories and subcategories; two further researchers reviewed and the three discussed edits until consensus, after which the primary coder ran thematic analysis and four team members agreed the themes. No minimum-participant threshold was set for a theme - inclusiveness was preferred over frequency
- Data types
- Interviews
Abstract
Introduction: Attention-Deficit/Hyperactivity Disorder (ADHD) is a debilitating condition affecting children and their families worldwide. Behavioral parent training is a recommended form of empirically supported non-pharmacological intervention for young children with mild to moderate ADHD. However, access to such treatment is limited in many countries. Here we identify the treatment needs of Brazilian families with children demonstrating symptoms of ADHD, and the barriers families face in accessing behavioral treatment. Methods: = 16). Semi-structured telephone interviews were conducted, and common themes were identified through inductive coding of participants’ responses. Results: Participants reported a lack of accessible behavioral treatment, and delays in accessing treatment when available. The majority of parents had not received behavioral parent training, despite it being a recommended form of treatment. Parents, educators and healthcare providers strongly endorsed a need for practical tools to manage the behavior of children with ADHD. Conclusion: Existing services might not meet the needs of children with ADHD and their families in Brazil. Easily accessed behavioral parent training programs are recommended to address the identified treatment gap for Brazilian children with ADHD and their families.
Citation
Patrícia Bado, Raquel da Costa, Camila Bernardes, Gail Tripp, Paulo Mattos, Emi Furukawa (2023). Needs assessment for behavioral parent training for ADHD in Brazil. Frontiers in Psychiatry. https://doi.org/10.3389/fpsyt.2023.1191289